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Carol Perkins: You're not going to believe this

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By Carol Perkins

When Guy said, "You're not going to believe this," I knew he was referring to something pathetic. He continued, "You remember when you sent the neurologist at Vanderbilt the note about her possibly helping get me into Mayo Clinic after they turned me down?" Of course, I remembered because her reply was, "I don't know anyone there." She didn't want to admit failure among her colleagues. Of course, she knew someone at Mayo. She studied there for years.

She gave up on him when she could not figure out the source of his chronic head pressure (not a headache as such), and tried endless medications and procedures that didn't help. He went to the Vanderbilt Pain Management Center for more experimenting, but not one change.

(Remember when I said not to mention it to him because he hates when I tell people because he pretends well.) The doctor there, upon our request, referred him to Mayo and they turned him down. I reminded the lady with whom I spoke that their ad said they had the answers! (They didn't find him critical enough)

Johns Hopkins turned him down based on whatever the pain management person said. The only person who has seemed to understand the ways of specialist is a cardiologist in Louisville who said that these fellows don't know patients; they only know a piece of paper. Guy was a piece of paper. Anyway, after nine doctors varying from heart, neurologist, general practitioners, more neurologists and even a guy who looks in your eyes, he has not felt one ounce of relief. With that said, when he got a message from the Vandy doctor today, he rushed to open it thinking she might have some new idea.

The message said that she was sorry this had taken so long to reply, but she had no pull at Mayo and suggested three other places he might go to. Then she wished him luck. (Did she forget she had brushed him off already).

Five months after he reached out to her, she replies. "Do you believe that?" Honestly, I can believe almost anything in the medical field but five months to reply to an email on MY HEALTH. COM at Vanderbilt! I dashed to his computer to send a snarky reply, but why bother. I wanted to discuss her incompetence but what good would that do? Then I laughed. We both did. Five months to get a response! If you aren't proactive with your own care, you better get someone to help you. In five months a patient could be gone.

Dealing with an illness that does not follow the normal graph of things is confusing for a doctor and he may no know what to do, but Guy has been going from one to another for almost five years. He has decided they don't believe him. They think he enjoys going from one to another and telling each one the story as if it is new. He is tired of trying to get help but I can't let it lay dormant. There is help somewhere. Just not anywhere close.

Follow Susan and Carol-Unscripted on 99.1 the Hoss in Edmonton on Tuesdays from 10amCT to 11amCT and replay on Sundays from 4pmCT to 5pmCT. Listen to Carol's podcast at for entertaining stories and a replay of Susan and Carol-Unscripted.

This story was posted on 2019-09-18 09:27:21
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